基于互联网招募的孤独症谱系障碍专病队列建设概况及启示

陈鑫; 高慧; 吴德; 陶芳标

doi:10.16835/j.cnki.1000-9817.2025038

基于互联网招募的孤独症谱系障碍专病队列建设概况及启示

doi: 10.16835/j.cnki.1000-9817.2025038

陈鑫¹,
高慧^{1, 2, ,},
吴德¹,
陶芳标²

1.
安徽医科大学第一附属医院儿科，合肥 230022
2.
安徽医科大学公共卫生学院出生人口健康教育部重点实验室/环境与人口健康重点实验室

基金项目:

国家自然科学基金面上项目 82473641

安徽省高校优秀青年项目 2023AH030118

详细信息

作者简介:
陈鑫(1999-)，男，安徽省人，在读硕士，主要研究方向为环境污染物暴露与儿童健康

通讯作者:
高鑫，E-mail: gh20190130@163.com

利益冲突声明 所有作者声明无利益冲突。
中图分类号: R179 R748 R395.3
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- 文章访问数: 115
- HTML全文浏览量: 55
- PDF下载量: 28
- 被引次数: 0
出版历程
- 收稿日期: 2024-09-09
- 修回日期: 2024-11-14
- 网络出版日期: 2025-03-05
- 刊出日期: 2025-02-25

Overview and implications of the cohort construction for autism spectrum disorders based on Internet recruitment

CHEN Xin¹,
GAO Hui^{1, 2
, ,},
WU De¹,
TAO Fangbiao²

1.
Department of Pediatrics, First Affiliated Hospital of Anhui Medical University, Hefei (230022), Anhui Province, China

摘要

摘要: 中国孤独症谱系障碍(ASD)专病队列的建设尚在起步阶段，依托儿童保健等诊疗过程采集的数据使其成本-效益不足。2000年后，基于互联网招募建设的美国西蒙斯推动ASD研究、美国早期ASD风险纵向调查和英国婴幼儿ASD同胞研究等，为中国建设ASD大样本专病队列提供了新思路。未来的研究可进一步探索和优化互联网招募的方法，建立更全面、准确的ASD专病队列。
- 孤独性障碍 /
- 队列研究 /
- 数据库, 文献型 /
- 儿童
Abstract: The construction of autism spectrum disorders (ASD) specialty cohorts in China is still in its infancy, and the cost-effectiveness is insufficient when relying on diagnostic and treatment processes of child health care to collect ample and high-quality data. After 2000, the United States Simons Foundation's ASD Research Initiative, the Early ASD Risk Longitudinal Investigation (EARLI), and the British ASD Study of Infant Siblings (BASIS), which have been built based on Internet recruitment, have provided new insight for the construction of large-sample ASD specialty cohorts in China. Future research can further explore and optimize the methods of Internet recruitment, and establish a more comprehensive and accurate ASD specialty cohorts.
- Autistic disorder /
- Cohort studies /
- Databases, bibliographic /
- Child
注释:

1) 利益冲突声明 所有作者声明无利益冲突。

HTML全文

图 1 SPARK与EARLI队列相关研究主题可视化分析

注：A为SPARK队列相关研究，B为EARLI队列相关研究。

Figure 1. Visual analysis of SPARK and EARLI cohort related studies

下载: 全尺寸图片幻灯片

参考文献(33)

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